Friday, 8 January 2016

:: this girl ::

Over the last couple of evenings I've been going through my photos from the last 8 months, finally able to sort them onto a new computer. I've been handling my camera card with much care over these months, hoping all the photos would stay safe as they accumulated, and it literally fell to pieces when I pulled it out of the computer slot after downloading them all...phew! What I've noticed as I've sorted the blurry shots from the clear keepsakes, is how far our little one has come over these months. Already I have forgotten the details of those first days and weeks and all the little and big steps she made her way over, one by one. The way she did (and still does!) things in her own style so that we heard several times "We've never done this before!" But Elea did, and that's the way she's made her mark, slowly but steadily knocking out the obstacles in her way. Our days have become so much more peaceful and relaxed as she has become more stable and strong.

With her condition we've been curious to see how she would develop, because it's always been a "wait-and-see" situation. On Monday we passed her 8-month birthday (and 6-month corrected age) and, in many ways, she's not at all far behind her fellow babies...though we all know they develop and reach milestones at quite a varied range of ages.

More important than whatever developmental milestones she reaches or not and when, she's a wonderfully peaceful little girl and almost always content. Her eyes sparkle before a smile appears. She's funnily ticklish and often giggles as we change her. She really searches to make contact with anyone around, trying to make eye contact (even right now, she's just woken up beside me and wants to chat!). She has a great time under her playmat mobile, trying constantly to roll over or scoot herself all over the place. She has incredible determination as she tries and tries again to hold her head up high on her tummy. We know it's hard work for a little one with overall weak muscle-tone, but she has that inner strength that got her to where she is today. She loves her tastes of pureed foods and is coping very well despite the fact that she's still completely tube-fed and seems to have missed the mark on wanting to take anything from a bottle. She's learned how to hold her "lolo" (pacifier/dummy) in place, which is a wonderful developmental milestone in my eyes! ;o) She's quite simply our delightful, happy, beautiful little dark-haired girl, and we are so thankful for her. Our movements have been restricted and we often have to pass on going places in an effort to keep her health a priority, but she is growing in strength and it won't be long before these 'sacrifices' (though, I tend to see it more as quite a normal priority) will fade into distant memories, just as those first scary days already have. What a joy to be in these days!


  1. Praise God that she's come so far despite some really scary moments. His mercies are new every morning. Literally.

  2. Praise God that she's come so far despite some really scary moments. His mercies are new every morning. Literally.